Alliance For Cryoglobulinemia

Alliance For Cryoglobulinemia
You Are RARE But NOT Alone

About Me

My photo
My Maddening Maze began suddenly, when I was just 47, with a plethora of autoimmune diseases. The life I knew changed forever due to chronic debilitating fatigue and pain. Faced with challenges beyond my understanding I began a never ending search for answers. I was later diagnosed in 2010 with a Rare Disease, Cryoglobulinemia Vasculitis. This disease causes my blood to gel in what appears to be temperatures lower than 70 degrees. When this phenomenon happens it can be life threatening causing organ damage, stroke, eye and vision loss along with a host of other complications. Both my kidneys and heart have been attacked by this uninvited guest and each day brings new challenges both physically and mentally. I live to find answers for myself and others that are afflicted with this rare disease and to find joy in living, whatever the cost. My passion and purpose is sharing the voice of the patient lost in the Maze and offering the face of Wellness in spite of it all.

Sunday, July 31, 2011


Hi to my fellow bloggers. I'm redesigning my blog template today and plan to start posting again hopefully by tomorrow.  It has been since February since I have been here due to a variety of complications with my health. For the last month or so I have been catching up on life, getting things back in order, sorting, filing, cleaning, organizing.

I am happy to say that I am in the Waking Up Stage again and having been here many times over it takes time to reconnect to ever aspect of life.  Although it is a slow process it is a welcomed stage to be journeying through.

1 comment:

  1. Namaste sister NaNa, wishing you the best for love and light.

    In Lak' ech, sister live in truth prosper in love...


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