Alliance For Cryoglobulinemia

Alliance For Cryoglobulinemia
You Are RARE But NOT Alone

About Me

My photo
My Maddening Maze began suddenly, when I was just 47, with a plethora of autoimmune diseases. The life I knew changed forever due to chronic debilitating fatigue and pain. Faced with challenges beyond my understanding I began a never ending search for answers. I was later diagnosed in 2010 with a Rare Disease, Cryoglobulinemia Vasculitis. This disease causes my blood to gel in what appears to be temperatures lower than 70 degrees. When this phenomenon happens it can be life threatening causing organ damage, stroke, eye and vision loss along with a host of other complications. Both my kidneys and heart have been attacked by this uninvited guest and each day brings new challenges both physically and mentally. I live to find answers for myself and others that are afflicted with this rare disease and to find joy in living, whatever the cost. My passion and purpose is sharing the voice of the patient lost in the Maze and offering the face of Wellness in spite of it all.

Wednesday, January 26, 2011

JOY IN THE MOMENT



HOW MUCH DO WE MISS??????????????????
CREATION
SOMETHING I LOVE...PHOTOGRAPHY


SIMPLICITY


BEAUTY




Noticing all things that bring me joy.


   
ENDLESS







WHAT YOU THINK YOU BECOME

WHERE ARE YOU? WHERE ARE YOU GOING?

Thankful for all that I have learned on my journey.





DO YOU BELIEVE? 
WHAT DO YOU BELIEVE?


INNOCENCE
DETERMINATION!










LOVE


CREATIVITY




UNITY
GOD



COLORS OF LIFE, VIBRANT!



JUST HAVE TO LOVE THE BABIES!










PEACE


CELEBRATION


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1 comment:

  1. David C BrownFebruary 4, 2011 at 4:20 PM

    A fine variety, and God's creatures are wonderful. (Not so sure of all of the man-made things!)

    ReplyDelete

Please contact me at mvennitti@allianceforcryo.org if you would like to know more about Cryoglobulinemia Vasculitis.

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