Do you find blessings in each day? Do you notice the windows and doors that constantly open
allowing you the view of new possibilities and do you see the people that cross your
path offering you exactly what you need at the moment?
I am blessed to have new eyes to see this awareness due to my many
years of illness. Yes, it is a gift that we all receive when adversity
crosses our path of desires, passions and commitments. Clarity becomes the
force and focus of survival mode. Within that clarity is a pathway that leads
us exactly where we are meant to be.
This reality does not negate what I deal with on any given day: extreme
highs and low, uncertainty of treatments options and the fear of not seeing
tomorrow’s sun. It has been an arduous journey as a patient living with a rare
disease but within the darkness, the light of family, friends, caring strangers
and healthcare advocates renew my spirit each day.
For example, on one particular day, when I was crashing below my
comfort zone, I received a tweet from @rebecca_aris from pharmaphorum wanting
to know if I would be interested in doing an interview. Not knowing who she was or what we were going
to discuss I opened the door, walked in and here is what we said.
I’m grateful for the opportunity to share my story for other rare
disease patients and communities. I’m grateful for the network of strangers
that allow me to weave my web within social media bringing awareness to the
unmet needs of so many people. I am extremely grateful if you will share my
story for us.
Thank you pharmaphorum for your work in "Bringing Healthcare
Together"
LaughingNana is Grateful for Each Day.
No comments:
Post a Comment
Please contact me at mvennitti@allianceforcryo.org if you would like to know more about Cryoglobulinemia Vasculitis.