ULTRA ACT FOR RARE DISEASES 2012

A QUICK READInformation on the ULTRA ACT now be addressed in congress. You can easily vote.The Unlocking Lifesaving Treatments for Rare diseases Act of 2012, or ULTRA, H.R. 3737, will improve access to the FDA's Accelerated Approval process for very rare diseases, provide a more predictable regulatory process, bring down development costs, and spur investment in the development of treatments. Additionally, ULTRA requires the FDA to use the best science available, ensuring treatments are safe and effective and reach patients sooner. With the introduction of ULTRA, the EveryLife Foundation will begin to build Congressional support for this important legislation. Most importantly, we thank Representatives Stearns and Towns for their leadership and support of the rare disease community.

http://www.curetheprocess.org/ultra_act

Marianne Vennitti
https://www.facebook.com/groups/318304641519371/
Cryoglobulinemia Vasculitis Organization